Hi Everyone - Glad I found y'all.
My name is David, 27 yr old male, Austin, TX.
1 - How long has everyone seen their recovery been to get to 90% - 100%. I've read average is 1 to 6 months. That is a wide average and I am nervous as I am just hitting the 6 month mark and probably at around 70%.
2 - Any suggestions on supplements that really kick butt? I am on Omega 3 6 9, Vitamin D & E, and some amino acids. Any other ideas of something that really helped recovery?
I started to get a vertigo sensation around mid June of 2013. I eventually went to the Dr and the ran blood tests, everything fine. Over the next few weeks I developed numb arm, and a hard time speaking and swallowing. I went to 2 ENTs and eventually a neurologist that did a MRI and found a lesion. I was referred to a neuro surgeon as they believed it was either a tumor or tapeworm. They ran additional tests including spinal tap and all were - okay. Finally, on July 5th as problems continued to develop i agreed to let the surgeon go in.
The suregon found normal tissue, and I awoke in the ICU where I would stay for the next 40 days. They continued to run additional tests including another spinal tap (bone, skin and lung biopsies and a lot of viral type blood work) everything was fine. At this point I had been tracked, got a peg tube and could only communicate via writing or texting. My vision was double and I used font 50 on the computer. I was put on a "shotgun approach" from the Drs which included an anti viral, antibiodic, anti fungal and steroids all at the same time to try to improve. This did little, and eventually they did plasmapheresis which stabilized me.
After this I requested to leave the hospital (i was so tired of it) and go to therapy. I was moved without them knowing what I had, but i figured I could fight through it. While at therapy the new doctors finally brought up ADEM. I then did a few rounds of IVIG. After about of month of inpatient I was moved to out patient as I could walk for 10 minutes or so. Still could barely speak, and could not eat.
I eventually moved back to Indiana into my parents house so they could help care for me. And in September did heavy steroid treatment of 1G for 5 days.
It wasnt until late october I was able to eat some what again, and people can finally understand me. I am walking a little better every month, but still have tightness or heavyness on my right side. Vision is getting better, but aways to go.
I've read a few other posts and I feel blessed compared to the condition of some of my peers. I pray we all recover quickly. I guess I just feel like I am improving very slowly and am anxious to get out of my parents house. Any additional thoughts and answers to my 2 questions will surely help.