Rare Neuro-Immune Disorders Symposium - Oct 2015

For those interested, here is the link to the conference info. My husband and I will be going, and I'll happily take any questions or insights you have to share.


"Welcome to the 2015 Rare Neuro-Immune Disorders Symposium on Emerging Science and Treatments for Transverse Myelitis (TM) (including the subtype Acute Flaccid Myelitis), Neuromyelitis Optica (NMO), Optic Neuritis (ON), and Acute Disseminated Encephalomyelitis (ADEM). This conference, hosted by The Transverse Myelitis Association (TMA), The University of Texas Southwestern Medical Center (UTSW), Children’s Health – Dallas and The Johns Hopkins Transverse Myelitis Center (JHTMC), is dedicated to the exchange of information regarding diagnosis, research, and treatment strategies, and to providing an opportunity to bring together the community of individuals diagnosed with these rare neuro-immune disorders, families, caregivers, and the medical professionals who have interest and are specializing in these disorders.

In addition to the education program, the TMA will be hosting pre-conference workshops and courses to build an enhanced support network system and advance the clinical training and science to achieve better quality of life for individuals diagnosed with rare neuro-immune disorders and their families.

The International Myelitis Working Group Meeting will be held on October 23rd with invited scientists and clinicians to update diagnostic criteria and recommended diagnostic evaluation for non-traumatic myelopathy, with special emphasis on Myelitis (INVITED PARTICIPANTS). View Agenda

An advocacy workshop will be held on October 23rd with TMA support group leaders to expand the support group network and infrastructure globally.

A neuro-rehabilitation pre-course will be held on October 23rd in partnership with The International Center for Spinal Cord Injury at The Kennedy Krieger Institute to offer physical therapists and occupational therapists an opportunity to learn about neuro-rehabilitation in AFM, TM, NMO and ADEM. For more information on the ABRT pre-course click here.


  1. Acquire an understanding of the biology and causes of rare neuro-immune disorders (TM, NMO, AFM, ADEM, and ON) and how they relate to each other
  2. Learn about the latest medical and surgical strategies to manage the symptoms associated with these chronic rare neuro-immune disorders
  3. Gather information and knowledge on the latest acute and long-term immunotherapies, clinical studies, and future treatment strategies


This conference is open to all individuals diagnosed with AFM, TM, NMO, ON, or ADEM, their families and caregivers. Medical professionals interested in these disorders are also welcome to attend."