Hi gang,
If you’re not already a member of The Myelitis Association, I strongly urge you to join. It’s free, and they have many resources on doctors and current research in the de-myelinating illnesses.
Also, they are about to launch a survey to get more info about ADEM sufferers. I’ve been urging them to pursue research especially for adult-onset ADEM, as there is little to no work happening there.
Keep the faith!
LauraK