I had posted almost one month ago when our ADEM journey started and this group helped tremendously. At that time, I was confused, hopeless, and emotionally a mess. My husband had been transferred to ICU and was getting intubated. After high dose steroids, with little result, the hospital started Plex treatments (plasmapherisis/plasma exchange) and after the third one, my husband started to improve. He is getting discharged from the hospital on Wednesday, walking with a walker/cane but otherwise able to speak, feed himself etc. We are so blessed!
I'm wondering how many of you had a steroid taper following plasma exchange. My husband has not been on a steroid taper, and hasn't seen a neurologist since he was transfered to the rehab floor.
Thanks for any input!