I hope this message finds you well. Today, I want to share a powerful story that illustrates how our Ben’s Friends community is making a real difference in people’s lives. This story highlights why your support, whether through fundraising or direct donations, is so crucial to our mission.
Meet John:
John was born with severe type 1 Von Willebrand’s Disease (VWD) and later discovered he also had Atrial Septal Defect (ASD), a congenital heart condition. With such a rare combination of conditions, John felt isolated and unsure of where to turn for support and information.
In his words:
“Ben’s Friends is near and dear to my heart for so many reasons. I am blown away by the current and new members that I come into contact with each and every day. Some might say my story is inspirational, but I would beg to differ*. I am just one of the thousands and growing inspirational stories on Ben’s Friends.*”
John found not only support but also a sense of purpose through Ben’s Friends. He became actively involved in moderating patient communities, helping others navigate their own journeys with rare diseases.
Your Support Makes a Difference.
Stories like John’s are possible because of community members like you. By supporting Ben’s Friends, whether through fundraising or direct donations, you help us:
- Maintain and grow our dozens of online communities for rare diseases
- Launch new communities for underserved conditions
- Provide vital information and emotional support to thousands patients and families
How You Can Help:
- Share Your Story: Consider sharing how Ben’s Friends has helped you. Your experience could inspire others to support our mission.
- Become a Fundraiser: Create your own fundraising page and share it with your network. It’s a powerful way to amplify our message and reach more people who might want to support our rare disease communities.
- Make a Donation: If you’re able, consider making a direct donation. Every contribution, no matter the size, helps ensure that no one faces a rare disease alone.
Remember, your involvement, in whatever capacity you’re able to offer, makes a real difference. Together, we can ensure that more people like John find the support and connection they need.
Become a Fundraiser - OR - Donate Today
Thank you for being an essential part of the Ben’s Friends family.
Warm regards,
Ben’s Friends Team
P.S. If you have a story about how Ben’s Friends has impacted your life, we’d love to hear it. Your story could inspire others and help us continue our mission.