Hello Everyone,
I was released from the hospital the day before my 37th birthday. I was diagnosed with ADEM and had to stay for 8 days while receiving two different treatments (Steroids/IVIG). Honestly, I'm beyond confused about this disease and I'm left with uncertainty about my future. Here's a little bio about me.
I'm a healthy, active person who is conscious about what she eats and tries to avoid stress. I take my vitamins, drinks a green smoothies day, doesn't like fast food, and lives a really simple life with her boyfriend and cat. I barely get sick and when I do, I'm pretty good at recovering in a day or two. The last time I went to see a doctor was 15 years ago, until recently I got a full check up. Results came back - Perfectly healthy. I do suffer from depression and anxiety, but I do not take medication for it. There are threes vices I had - LOVES cheese (ate lots of it), I used to consume 3 cups of coffee a day and smoked - I quit all three vices about a month ago.
So how did I get ADEM?
October 30 - Had lots of stress at work (LOTS)
November 3 - Had a panic attack - felt a little sick
November 7 - family came over to visit (My niece had just gotten over a cold)
three days later - I got sick
November 18 - got bronchitis
November 19 - quit smoking
Thanksgiving week - Started to feel good, but noticed some weird things.
Vision started to get blurry followed by: dizziness in the morning, confused at times (felt almost lost)
Woke up one morning with my pants wet, noticed later that week that my pants would be wet while I was sitting at my desk, but I didn't feel myself peeing. Had trouble swallowing, it was more like a delay. (I had to think actually think about swallowing) My mouth would get really watery (lots of saliva).
December 8 - I was having difficulty speaking, couldn't write a sentence or an email. I kept asking my coworkers to help me.
December 10- Couldn't speak at all, it felt like my tongue was stuck. Went to the emergency hospital and was diagnosed with ADEM.
Now:
I'm having issues concentrating, writing sentences, reading for long period of time, reading comprehension, and memory.
I'm just happy to be alive, but still worry about another possible future attack.