# Pain and restless legs
**URL:** https://forum.acutedisseminatedencephalomyelitis.org/t/pain-and-restless-legs/1424
**Category:** General
**Created:** [September 12, 2019, 1:24am UTC](https://forum.acutedisseminatedencephalomyelitis.org/t/pain-and-restless-legs/1424 "2019-09-12T01:24:46Z")
**Posts on this page:** 8
**Page:** 1
### Author:  [@Cindal](https://forum.acutedisseminatedencephalomyelitis.org/u/Cindal)
#### Post date: [September 12, 2019, 1:24am UTC](https://forum.acutedisseminatedencephalomyelitis.org/t/pain-and-restless-legs/1424/1 "2019-09-12T01:24:46Z")
Hi,
I was diagnosed with ADEM in March of this year. I was temporarily paralyzed but eventually started to walk again. I can’t walk fast or run but I can walk now without assistance.
I have experienced quick jolts of pain in my legs throughout the day (the past 3 days). I hadn’t had this feeling before also, it seems that the restless leg feeling is getting worse. Has anyone else experienced this?
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### Author:  [@Modsupport](https://forum.acutedisseminatedencephalomyelitis.org/u/Modsupport)
#### Post date: [September 12, 2019, 5:43pm UTC](https://forum.acutedisseminatedencephalomyelitis.org/t/pain-and-restless-legs/1424/2 "2019-09-12T17:43:00Z")
I would encourage you to reach out to your doctor’s office. I do know that sometimes when nerves are recovering people can have jolts like you’re describing.
Sharon
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### Author:  [@Nickey4202](https://forum.acutedisseminatedencephalomyelitis.org/u/Nickey4202)
#### Post date: [September 14, 2019, 2:14am UTC](https://forum.acutedisseminatedencephalomyelitis.org/t/pain-and-restless-legs/1424/3 "2019-09-14T02:14:08Z")
I was diagnosed with ADEM beginning January. I was also paralyzed. I have dealt with restless legs and spasms as well. I can tell you it gets better over time. I find that it is worse the more active I am I take baclofen 10mg at night which helps.
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### Author:  [@Leslie444](https://forum.acutedisseminatedencephalomyelitis.org/u/Leslie444)
#### Post date: [September 14, 2019, 2:14am UTC](https://forum.acutedisseminatedencephalomyelitis.org/t/pain-and-restless-legs/1424/4 "2019-09-14T02:14:47Z")
It has been 2 1/2 years since my complete paralysis from the neck down. I can walk really well but stairs are very hard for me. I have to wear running shoes almost all the time for support. I still have daily pain and a lot of leg spasms at night. I have to take Gabapentin (2-3 pills) every morning and night or it’s much worse. I have Klonipin for bad nights when my legs spasm a lot. CBD cream helps quite a bit with the pain. This has not changed at all in over 2 years.
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### Author:  [@Arjen](https://forum.acutedisseminatedencephalomyelitis.org/u/Arjen)
#### Post date: [September 14, 2019, 8:06am UTC](https://forum.acutedisseminatedencephalomyelitis.org/t/pain-and-restless-legs/1424/5 "2019-09-14T08:06:35Z")
hey, i was diagnosed early april 2017. i was completely paralyzed. I certainly couldn’t walk for 7 months. now 2.5 years later I can walk about 1 km with a cane and then I have to rest for a while.
my legs are pretty stiff so I take 3x 10 mg baclofen every day. cbd oil help with me. it takes away some pain/spasme and I notice that it gives me a little more energy!
I am still improving over Months with little steps.
They say that pain in the legs is sign of recovering of the nerves
Keep your head up. 🕶
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### Author:  [@Modsupport](https://forum.acutedisseminatedencephalomyelitis.org/u/Modsupport)
#### Post date: [January 15, 2020, 5:53pm UTC](https://forum.acutedisseminatedencephalomyelitis.org/t/pain-and-restless-legs/1424/6 "2020-01-15T17:53:48Z")
A post was split to a new topic: [Neuropathy, Catheters and RA too](https://forum.acutedisseminatedencephalomyelitis.org/t/neuropathy-catheters-and-ra-too/1580)
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### Author:  [@Modsupport](https://forum.acutedisseminatedencephalomyelitis.org/u/Modsupport)
#### Post date: [September 15, 2019, 2:05am UTC](https://forum.acutedisseminatedencephalomyelitis.org/t/pain-and-restless-legs/1424/7 "2019-09-15T02:05:30Z")
> [@Neuropathy, Catheters and RA too](https://forum.acutedisseminatedencephalomyelitis.org/t/neuropathy-catheters-and-ra-too/1580/1):
>
> I’m not sure if you can send messages thru this site but I think of you Type the @ sign and anyone’s user name it will notify them by email.
Messaging works really well! @screenname on a post will alert the person to your posted comment.
Clicking on anyone’s avatar will bring up their profile and a MESSAGE button. Click on that and you’re on a private message.
For more instructions, click on  just below the banner and then choose which slide guide video you want to watch.
And if there’s still something that baffles you, ModSupport’s avatar  and then on message. We’ll hear your cry for help!
Seenie from ModSupport
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### Author:  [@Modsupport](https://forum.acutedisseminatedencephalomyelitis.org/u/Modsupport)
#### Post date: [October 7, 2019, 2:07am UTC](https://forum.acutedisseminatedencephalomyelitis.org/t/pain-and-restless-legs/1424/8 "2019-10-07T02:07:34Z")
5 posts were merged into an existing topic: [Parents with kids who had ADEM](https://forum.acutedisseminatedencephalomyelitis.org/t/parents-with-kids-who-had-adem/557/30)