This is a great short essay written from the caretaker’s point of view. I had my hubby read it, and he said that it seems to be true for us as well (he’s the caretaker).
Here’s the link:http://journals.lww.com/neurologynow/pages/articleviewer.aspx?year=2017&issue=13020&article=00021&type=FullText
By the way, Neurology Now is a free publication. Great reading.